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Publications

GA4GH Data Passports: Proposing a New Technical Specification for Data Policy Representation

August 5, 2025
Solving the Catch-22 in searching for controlled access data

April 7, 2025
FAIR Principles in Biobanking

December 18, 2024
Genomic Data Governance in the Cloud

October 18, 2024
DACs Speak! Global interviews on controlled access processes

May 5, 2024
How do DACs work? A survey on current and prospective processes

April 15, 2024
Who is a Signing Official? How do they comply with NIH policies…and where are they?

March 20, 2024
Mapping all NIH dbGaP data to the GA4GH DUO standard

September 13, 2023
Mech Suits for Policy Decision Making: Why code works well for upholding policy logic

October 17, 2022
Making sure FAIR is fair through machine-made decisions

June 23, 2022
Introducing the AnVIL

January 12, 2022
DAC v. Algorithm…or DAC + Algorithm. A look forward in genomic data access.

November 10, 2021

GA4GH Data Passports: Proposing a New Technical Specification for Data Policy Representation
Solving the Catch-22 in searching for controlled access data
FAIR Principles in Biobanking
Genomic Data Governance in the Cloud
DACs Speak! Global interviews on controlled access processes
How do DACs work? A survey on current and prospective processes
Who is a Signing Official? How do they comply with NIH policies…and where are they?
Mapping all NIH dbGaP data to the GA4GH DUO standard
Mech Suits for Policy Decision Making: Why code works well for upholding policy logic
Making sure FAIR is fair through machine-made decisions
Introducing the AnVIL
DAC v. Algorithm…or DAC + Algorithm. A look forward in genomic data access.